News Hub Opinion
Voices of experience on living with disability, inclusion and how the NDIS is transforming lives.
NDIS Minister National Press Club Address and what you might have missed (it’s scary!)
At today’s National Press Club Address NDIS Minister Bill Shorten made some important announcements and reminded me why I have such deep respect for this man and gratitude for his commitment to improving the lives of disabled people.
Then it ended with something really scary that freaked me out! Here is a summary of his announcements and my take on what he had to say. You’ll have to read to the end for the scary bit.
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What can we expect from the new chair of the NDIA Kurt Fearnley?
Our friend Dr George Taleporos sat down with the new Chair of the National Disability Insurance Agency, Kurt Fearnley, for his latest episode of Reasonable and Necessary. He finds out why Kurt took on the job, and what we can expect from his leadership of the Agency.
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Explainer: What were the original intentions of the National Disability Insurance Scheme?
One of the things people with disability and families have been asking their federal election candidates to reflect on this year is a promise to bring the NDIS back on track with it’s original intentions. To look at why we all fought so hard for the NDIS in the first place. What were the ideas, intentions and principles behind the idea for an NDIS? Our friends from PIAC have written a new helpful explainer…
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Explainer part 3: New changes to the NDIS Act
Last year thousands of you emailed our Senators urging them not to support certain changes to the NDIS Bill as originally proposed by NDIS Minister Linda Reynolds. And your message got through loud and clear – the changes were changed! The NDIS Bill was voted through parliament recently – thankfully our friends from PIAC have another explainer to help us all make sense of it all…
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Is your organisation returning to face-to-face meetings? You need to read this…
Lockdowns have lifted – and some disability organisations are moving back to face-to-face meetings, and interstate travel. The pandemic is not over. People with disability are still at risk of serious health complications and death – even with some protections from vaccines. And apart from that – we cannot now or ever forget the enormous gains mainstream society has made in online accessibility over the last couple of years. Our friend Dr George Taleporos has some important advice for these organisations based on his recent personal experience.
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Goodbye Mum, I’ll be okay
“Like most parents, my mum wanted to know that I was okay. But unlike most parents, her middle-aged son needs round-the-clock support from others, to stay alive.” Our good friend Dr George Taleporos has an important message for NDIS decision-makers, following the recent death of his Mother. “When we say the NDIS is for 450,000 Australians with disabilities – we are leaving out millions of family members who rely on the scheme to provide them with the assurance that their loved ones are going to be okay when they die.”
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Safety net in danger: High price of changes to NDIS legislation
Jessica*, 23, is working with her occupational therapist, to build the living skills she needs to move out of her parents’ home. She lives with both cerebral palsy and autism, and hoped to apply for NDIS supported independent living.
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Planning for life with COVID – getting some answers on what people with disabilities need to know to stay safe
As Australia opens up despite ongoing COVID community transmission, people with disabilities need to work through some complex questions. One of these questions hits our friend Dr George Taleporos a bit too close to home – so he got some answers to share with all of us in his new series of Reasonable and Necessary.
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Explainer part 2: What are the proposed changes to the NDIS Act?
On 28 October 2021, the Government introduced the National Disability Insurance Scheme Amendment (Participant Service Guarantee and Other Measures) Bill 2021 to the House of Representatives. If passed, this Bill will make changes to the NDIS Act. Our friend Chadwick is a Senior Solicitor from the Public Interest Advocacy Centre and he has very helpfully written a follow-up NDIS Act explainer to try and make it easier for people to understand.
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Left behind – disabled people and the COVID vaccine
A new report from the Disability Royal Commission into the COVID vaccine rollout is just the latest in a long list of documented failures by governments to address the needs and rights of disabled people. In the race to “open up”, governments must prioritise the needs of disabled people and do a much better job of engaging with the expertise of disabled people and the sector’s organisations, says El Gibbs, an award-winning writer and disability rights advocate.
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Explainer: What are the proposed changes to the NDIS Act?
What are the good, concerning, and missed opportunities in the draft NDIS Act and Rules? Our friend Chadwick is a Senior Solicitor from the Public Interest Advocacy Centre and he has very helpfully written another NDIS Act explainer to try and make it easy for people to understand.
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Support for decision making and the NDIS
The NDIA have just given everyone an extra two weeks to tell them what they think about support for decision making in the NDIS. We asked our friend Catherine McAlpine from Inclusion Australia to tell us what people with intellectual disability and their families think needs to change, and what Inclusion Australia is already working on.
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Explainer: What changes to look out for in the NDIS Amendment Bill
What are the top 5 big issues we can expect to see in the new NDIS legislation? We’ve all heard plenty about compulsory assessments – but what other changes to the NDIS are going to be hiding in there? Our friend Chadwick – who is a Senior Solicitor from the Public Interest Advocacy Centre – has very helpfully written an explainer to try and make it as easy as possible for people who are not experts in law to understand.
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Are the proposed Independent Assessment tools capable of informing funding decisions in NDIS participant plans?
What’s wrong with NDIS independent assessments? We asked our friend Muriel Cummins from Occupational Therapy Australia’s NDIS Taskforce to help explain why the selected assessment tools are not fit-for-purpose, and why they should not be used to determine plan funding.
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I quit my job with the NDIS in protest against independent assessments
“We are not being listened to and I have had enough.” Carl Thompson has just quit his job as an NDIS Local Area Coordinator out of anger and frustration with the National Disability Insurance Agency.
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Proposed changes to NDIS intervention for autistic children
The NDIA’s latest consultation paper on autistic kids is about more than early intervention like the title suggests. It proposes rigid and fixed funding blocks for children’s NDIS plans, well below averages in Nick Avery’s region. Nick wants you to know why this consultation is so alarming – and encourages you to provide feedback.
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An Open letter to Minister for the NDIS Stuart Robert
Dr George Taleporos thought long and hard about accepting the NDIA’s invitation to take part in the pilot of the new NDIS assessment process. He understands why everyone is concerned about the introduction of these new compulsory assessments and all the changes to the NDIS planning process. But in the end he hoped he could make a difference by providing detailed feedback about what the process was like. But now with the assessment complete George has a message for the Minister for the NDIS. And that message is stop – and come and talk to us about what should come next.
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“My NDIS ‘Independent Assessment’ was a nightmare”
“As an autistic person this petrifies me. The NDIS assessors don’t want to hear outside the boxes of ‘yes’ or ‘no’. I can only imagine how bad this will be for people who can’t articulate their needs well. We need to fight and make ourselves heard.”
Aaron Carpenter volunteered to take part in the pilot of the new “independent assessments” being introduced to the NDIS later this year. His experience was a “nightmare”. He wants everyone to know what went wrong – and why we can’t let this go ahead.
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NDIS needs reform but flawed assessment model requires more work
Michael* hasn’t showered or changed his clothes in three weeks, but when the National Disability Insurance Scheme independent assessor asked him how much difficulty he had washing his body, getting dressed and eating, he replied: “None.”
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Time to make all new housing more accessible
There is a once-in-a-generation opportunity right now to improve housing accessibility, for everyone. We asked our friend Dr Di Winkler from the Summer Foundation, and the Building Better Homes campaign to explain it all for us.
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Choice and control, advocacy and relationships – keys to addressing abuse and neglect
This year we learned of the horrific and tragic death of Ann Marie Smith. Her death prompted a police investigation (which is still ongoing), the creation of a taskforce in South Australia and a review into the NDIS Quality and Safeguards Commission by the Joint Standing Committee on the NDIS.
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New SDA rules are a win for participants and for the NDIS
There have been some great changes recently to the rules about Specialist Disability Accommodation (SDA). We know it can be hard to stay on top of everything that is happening so we have asked our good friend and resident SDA expert Dr George Taleporos to explain it all for us.
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The Federal Court decision to fund sexual supports – and what it means for for all NDIS participants
Last week, the Federal Court of Australia sent a clear message to the National Disability Insurance Agency. And that message was – if an NDIS participant needs a support because of their disability, the NDIS must fund it.
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Disability, health and the coronavirus: Why action is urgently needed
We all have stories to share about when the medical system has let us down. But people with disabilities have more than the average person.
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