“We are not being listened to and I have had enough.” Carl Thompson has just quit his job as an NDIS Local Area Coordinator out of anger and frustration with the National Disability Insurance Agency.Read more
The NDIA’s latest consultation paper on autistic kids is about more than early intervention like the title suggests. It proposes rigid and fixed funding blocks for children’s NDIS plans, well below averages in Nick Avery’s region. Nick wants you to know why this consultation is so alarming – and encourages you to provide feedback.Read more
Late yesterday afternoon on Stuart Robert’s last day as NDIS Minister, the NDIA released a new consultation paper called “Interventions for children on the autism spectrum”. The paper proposes radical new changes to NDIS funding and supports for Autistic children. Katharine Annear explains why this consultation paper has Autistic people outraged.Read more
Dr George Taleporos thought long and hard about accepting the NDIA’s invitation to take part in the pilot of the new NDIS assessment process. He understands why everyone is concerned about the introduction of these new compulsory assessments and all the changes to the NDIS planning process. But in the end he hoped he could make a difference by providing detailed feedback about what the process was like. But now with the assessment complete George has a message for the Minister for the NDIS. And that message is stop – and come and talk to us about what should come next.Read more
“As an autistic person this petrifies me. The NDIS assessors don’t want to hear outside the boxes of ‘yes’ or ‘no’. I can only imagine how bad this will be for people who can’t articulate their needs well. We need to fight and make ourselves heard.”
Aaron Carpenter volunteered to take part in the pilot of the new “independent assessments” being introduced to the NDIS later this year. His experience was a “nightmare”. He wants everyone to know what went wrong – and why we can’t let this go ahead.Read more
Michael* hasn’t showered or changed his clothes in three weeks, but when the National Disability Insurance Scheme independent assessor asked him how much difficulty he had washing his body, getting dressed and eating, he replied: “None.”Read more
This year we learned of the horrific and tragic death of Ann Marie Smith. Her death prompted a police investigation (which is still ongoing), the creation of a taskforce in South Australia and a review into the NDIS Quality and Safeguards Commission by the Joint Standing Committee on the NDIS.Read more
“Please stop making this so hard. We are bruised and fragile already, COVID has made us even more vulnerable, and then we have to fight against the very service that is meant to be helping us. Please stop making our needs a battleground, stop assuming we are somehow trying to swindle services we don’t need, and just let us have the NDIS that we were meant to get.”Read more
There have been some great changes recently to the rules about Specialist Disability Accommodation (SDA). We know it can be hard to stay on top of everything that is happening so we have asked our good friend and resident SDA expert Dr George Taleporos to explain it all for us.Read more
The Federal Court decision to fund sexual supports – and what it means for for all NDIS participants
Last week, the Federal Court of Australia sent a clear message to the National Disability Insurance Agency. And that message was – if an NDIS participant needs a support because of their disability, the NDIS must fund it.Read more
Someone in my home got the dreaded phone call last week – he’d been exposed to COVID-19 and needed to self-isolate. And to my extreme shock, all our contingency plans actually worked as intended!Read more
We all have stories to share about when the medical system has let us down. But people with disabilities have more than the average person.Read more
Advocates from VALID have shared the story of an important win at the Administrative Appeals Tribunal for Jake, a young man with complex support needs. Here’s what the AAT agreed to.Read more
Today our good friend Dr George Taleporos will give evidence to the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability at their hearings in Melbourne.
We asked Dr George what he planned to tell the Commission – and what he thinks needs to change when it comes to housing for people with disability.Read more
Today is International Day of People with Disability. The purpose of the day is to promote understanding of the issues facing people with disability, and to push for change.
We don’t often hear from people who use different forms of communication on this day. So we thought this was a good chance to ask our Champion Carleeta what she has been up to lately.Read more
Tomorrow is International Day of People with Disability. The purpose of the day is to promote understanding of the issues facing people with disability, and to push for change.
We don’t often hear from young people with disability on this day. So we thought this was a good chance to ask our Champion Benjamin what he has been up to lately, and what he would like to see change for young people in this country.Read more
Last week the Royal Commission on Aged Care released their interim report. The report was long and there was a lot to take in, so we asked our good friend George Taleporos at the Summer Foundation to cast his eye over it and tell us what we needed to know.Read more