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A new report from the Disability Royal Commission into the COVID vaccine rollout is just the latest in a long list of documented failures by governments to address the needs and rights of disabled people. In the race to “open up”, governments must prioritise the needs of disabled people and do a much better job of engaging with the expertise of disabled people and the sector’s organisations, says El Gibbs, an award-winning writer and disability rights advocate.Read more
In January 2021 the Commonwealth government released its COVID-19 vaccine rollout strategy. The plan prioritised those most likely to be exposed to COVID-19, and importantly those most likely to become ill and die from the disease – a sensible approach, similar to many jurisdictions around the world.Read more
Open letter: Regarding the reality of booking a COVID vaccination for children with disability and medical conditions
This month, young people with disability joined the list of people who are allowed to get the COVID-19 vaccine. Being eligible is one thing – but how easy is it to actually make happen? Just as we have heard from so many people with disability and families in our community – Heike and her son Bodhi found out just how difficult it can be – the hard way. This is Heike’s open letter to the government.Read more
Breaking news out of the NDIS this morning …
And it is not good. Not good at all.
Buried in an announcement about the end of some of the changes made to the NDIS as a result of the COVID19 is the news that participants will NO longer be able to buy or top up Support Coordination out of their core budget.Read more
Victoria has the highest numbers of COVID19 infections in Australia. We are collecting all the latest news, info and resources for people with disability and families as it comes out so you don’t have to go hunting. (We have done our best to try and explain what it all means which has NOT been easy…)Read more
The NDIS Quarterly Reports have always had lots of interesting data on how the scheme is tracking. They allow people with disability, their families, organisations, even governments (shock horror) to get a better idea of where the scheme is working well – and where it is not.Read more
In the middle of a global pandemic and with the country facing the worst economic crisis in more than a generation, the NDIS was never going to be a headline feature of this year’s Federal Budget.Read more
“Please stop making this so hard. We are bruised and fragile already, COVID has made us even more vulnerable, and then we have to fight against the very service that is meant to be helping us. Please stop making our needs a battleground, stop assuming we are somehow trying to swindle services we don’t need, and just let us have the NDIS that we were meant to get.”Read more
Changes have been announced for people with disability in some parts of Queensland about masks and PPE, supported accommodation, and new rules. We’ve popped all the info people with disability and families need to know right here – and we will keep updating as new info comes out.Read more
“We feel forgotten. We need help. And we need things to be much, much easier”.
They were the messages we took to the Disability Royal Commission yesterday.Read more
“Left out and locked down” The experiences of people with disability and their families during COVID19
“We’ve been forgotten. We need more help. We need things to be easier”. They are the overwhelming messages to come out of our Coronavirus survey for people with disability and families.Read more
Media release: “Left out and locked down” report highlights the COVID-19 experience of people with disability
A new report into the experiences of NDIS participants and their families during the first wave of the COVID-19 pandemic shows many were stretched to breaking point and let down by poor communication and a lack of support and help.Read more
There’s been a bunch of new info released over the last couple of months around masks and people with disability. We’ve popped it all in the one place so you don’t have to go hunting. (And we have done our best to try and explain what it all means which has NOT been easy…)Read more
Why can’t we have planning meetings over video? Why can’t we get contact details for staff at the NDIA? Why do approvals for equipment take so long?
And will you cut my funding next time because I did not use all of it as a result of COVID lockdowns?Read more
Disability advocacy groups are calling on the National Disability Insurance Agency, the Federal government and the Victorian State government to all work together to make sure people with disability and their families have what they need to stay safe and well during the coronavirus pandemic.Read more
For all our Melbourne peeps, our hearts go out to you. Another six weeks in lockdown. And we are with you – because that is where we are based too.Read more