News | 3 April 2020

A Letter to the Prime Minister and all the Premiers

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10 different emojis on a light green-blue background, over ten ideas: 1. Essential needs (woman using manual wheelchair) 2. Testing (green virus), 3. Information (information symbol) 4. Health care (a stethoscope) 5. Income support (the Services Australia logo) 6. Clear rules (a person shrugging their shoulders) 7. Safety (SOS button) 8. Education (a pile of books) 9. Human Rights (the UN flag) 10. More support (a red telephone).

People with disability are some of the most vulnerable people in Australia when it comes to Coronavirus (COVID19). We want to make sure they have everything they need to keep themselves safe and well.

We are organisations representing people with disability and their families. We are talking to people all the time and hearing about the problems they are having during this emergency. So, we have come up with a list of 10 actions that your governments should take to help people with disability through this crisis. These things are urgent – you cannot afford to wait.

Because if you don’t do these things, lives will be lost.


1. Make sure people have the support they need

Many people with disability rely on support for their essential everyday needs, like eating and drinking. Others need support to keep themselves safe and mentally well. Some service providers have already stopped providing services. This puts people’s lives in danger. State and Federal governments cannot let that happen – they must give people a guarantee that will get the support they need when they need it. And for people with an NDIS plan, they need to be able to spend their funds in the way that works best for them in this emergency. The NDIS must be more flexible.


2. Make sure people with disability and their workers can get tested for Coronavirus

Many people with disability have workers coming in and out of their homes to help and support them. They cannot isolate or protect themselves like most other people. So, the Health Department needs to make sure that people have access to all the protective equipment and gear they need to try and prevent infection. And support workers and people with disability need to be given priority to get tested for the virus so we don’t have people infecting each other.


3. Make sure people with disability and their families have all the information they need to keep themselves safe and well

At this incredibly stressful and worrying time, people with disability and their families need simple, clear information so they know what to do and how to protect themselves. They also need to make sure they follow all State and Federal Government rules – because if they don’t they might be fined. People are really confused at the moment – for example if only two people are allowed to be together out of the house what does that mean for people who need two people to help them?

All information needs to make the rules clear for people who rely on support workers and families for support. And all governments need to provide information in lots of different ways, so no one misses out – we need information in Plain English, Auslan, Easy Read and translated into different languages (including First languages). And the websites and apps that have this all information must be accessible to everyone (including people who don’t have the internet).


4. Make sure people with disability can get the health care they need when they need it

In other countries we have already seen that people with disability are not getting health care in the same way as others. To put it plainly – people with disability are being left to die. We cannot allow this to happen in Australia. The Health Department needs to make clear to all hospitals, health care services, doctors, nurses and workers that they must treat people with disability the same way they treat others.

Making sure people with disability can look after their health also includes making sure they can get essential supplies easily – things like fresh food, cleaning supplies, continence aids etc. In regional and remote areas this is already difficult and will get even harder.


5. People who are on the Disability Support Pension should receive extra funds just like people on government payments

Almost 50 per cent of Australians with disability already live in poverty. And now there are lots of additional costs to try and manage the impact of the virus – prices of goods have gone up and people are having to buy things they did not have to buy before – like cleaning products, extra data for their phones, devices to do things online. So, people with disability need the additional Coronavirus supplement given to others so they can keep themselves safe and well.


6. Make sure people understand what is an “essential service”

The information about what is considered “essential” during this crisis has been really confusing. Our organisations have received so many questions about what people are allowed and not allowed to do. All governments need to explain clearly and simply what an essential service is and make it clear what individuals, families and workers can and can’t do.


7. Make sure people are safe and not vulnerable to violence, abuse or exploitation

We know rates of violence and abuse are already very high for people with disability. But with everyone staying in their homes during this crisis, this is likely to get even worse. And many people with disability will be even more dependent than usual on help from others. No one will be checking to make sure they are ok. People who live with others in shared accommodation are particularly at risk. So, we need governments to come up with a plan to reach out and check on people and provide them with help and support if they need it.


8. Make sure students with disability have what they need to get a good education like everyone else

We know that many students with disability already have trouble getting a good education. And now with everything moving to learning online, this is likely to get much worse. We need all Departments of Education to come up with a plan to make sure students with disability are still supported and able to learn during this crisis. Otherwise they will fall even further behind.


9. Protect the human rights of people with disability

People with disability who live in shared accommodation are particularly at risk at the moment. We are already hearing stories about people being locked up without their permission. We are also hearing that information about what is happening is not getting to them. So, we need the government to come up with a plan to make sure people’s rights are protected, that they have the information they need, they can still make choices about how to keep themselves safe and well and so they are safe from abuse.


10. Make sure the organisations that support and help people with disability have enough funds to do their important work

Because of this emergency, all of our organisations have had more people than ever before contact us asking for help. We are independent organisations that people know and trust – and so they naturally come to us first. We are also the organisations that governments come to for advice because we know what is really happening to people with disability and their families. So, we need more funding to keep helping people – and to keep giving good advice to governments so they focus on what is important.


First page of the Easy Read version of the open letter

Download the Easy Read version of this letter.

Download the longer version of this letter as a PDF or text-only Word document.

Read the media release.

Watch the Auslan Version above.


This letter is from these organisations:

First Peoples Disability Network

Women with Disabilities Australia

People with Disability Australia

National Ethnic Disability Alliance

Children and Young People with Disability Australia

Australian Federation of Disability Organisations

Disability Advocacy Network Australia

Deaf Australia

Autism Aspergers Advocacy Australia

Deafblind Australia

Deafness Forum of Australia

Brain Injury Australia

Inclusion Australia

Blind Citizens Australia

Down Syndrome Australia

Physical Disability Australia

Every Australian Counts

Disability Resources Centre Advocacy


Disability Justice Australia

Enhanced Lifestyles

National Mental Health Consumer and Carer Forum

Imagine More

Advocacy Western Australia

Midland Information Debt and Legal Advocacy Service

Melbourne East Disability Advocacy

Queensland Advocacy Incorporated

Family Advocacy

Grampians Disability Advocacy

Syndromes Without A Name

Advocacy Tasmania

Southwest Advocacy Association

Victorian Rural Advocacy Network

Assert 4 All

Colac Otway Region Advocacy Service

Disability Information and Advocacy Service

Gipplsland Disability Advocacy

Community Resource Unit

AED Legal Centre


Centre of Research Excellence in Disability and Health

People with Disabilities Western Australia

Association for Children with Disability Tasmania

Association for Children with a Disability Victoria

All Means All

Queensland Collective for Inclusive Education

Southern Disability Advocacy

Rights Information and Advocacy Centre

Regional Disability Advocacy Service

Youth Disability Advocacy Service

National Aboriginal and Torres Strait Islander Legal Services

Spinal Cord Injuries Australia

Barwon Disability Resource Council

North East Citizen Advocacy

Julia Farr Youth

Leadership Plus


Women with Disabilities Victoria

Citizens Advocacy Perth West

Speakout Advocacy

Developmental Disability WA

Women with Disabilities ACT

Council for Intellectual Disability

Citizen Advocacy Sunbury

South Australian Council on Intellectual Disability

Parent to Parent Queensland

People with Disabilities ACT

Aspergers Victoria

Disability Advocacy and Complaints Service of South Australia

Australian Centre for Disability Law

Disability Advocacy Victoria


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