In The Media | 1 April 2016

Young boys with rare muscle disease among the first to receive NDIS in Queensland

Jacqui Kynaston’s two sons, Archie, 8, and Jensen, 2, were diagnosed with a rare muscle disease called Duchenne Muscular Dystrophy.

The disorder could potentially stop her sons walking by the age of 12 and prevent them from living past their twenties.

Since the diagnosis last year, Mrs and Mr Kynaston have been doing all they can to raise money to support their boys, but when they heard Mackay would be among the first areas in Queensland to receive the NDIS rollout from July this year, both were relieved.

“It is very exciting to know that a regional centre is able to access such a new and exciting scheme, especially for the boys,” Mrs Kynaston said.

“Disability is not a one-size-fits-all kind of thing, and especially with the boys having Duchenne — every boy is different,” she explained.