New research shows people with the highest physical and medical support needs risk being shunted between the heath and disability sectors, and missing out on timely, well-coordinated care.
Thirteen years ago, when Paul was 17 years old, he sustained a severe acquired brain injury which left him with 24-hour support needs.
Paul now requires feeding through a tube in his stomach. His muscle tone has altered, so his movement is limited and he has ongoing continence and pressure care issues. Paul needs regular mouth suctioning to ensure he does not inhale his own saliva and contract pneumonia.
Paul is already involved in the National Disability Insurance Scheme (NDIS) planning process; others with high-needs will gain access when the scheme is fully implemented in 2019.
But as the NDIS rolls out nationally, some major policy planning problems must be resolved.
Source: The Conversation