In The Media | 5 May 2017

NDIS reviews practices after lengthy delay in helping critically ill Queensland toddler

Tyler Flaskas, 20 months, has mitochondrial disease which causes muscle spasticity, and cannot sit or hold his head and endures painful muscle spasms.

The Mackay toddler’s parents, James and Abbey-Lee Flaskas, had hoped the National Disability Insurance Scheme (NDIS) would provide him with the respite care, equipment and therapy he needs for “basic quality of life”.

“The chance for him to do what most 20-month-olds do … roll around on the floor and crawl around; they don’t exist anymore,” Mr Flaskas said.

The family contacted local NDIS agency UnitingCare Community last December, and met with a case worker the following month, but they have not had contact since February.

Mr Flaskas said it had pushed the family to “breaking point”.

Source: ABC News