It is a really stressful time for people with disabilities and our families as we await the recommendations of the NDIS Review.

Many people in our community put a great deal of time and effort to contribute to the Review

Here is a quick summary:

The review will be saying that the NDIS should not be as concerned about a person’s primary medical diagnosis. They want the focus to be on functional capacity instead. We have heard many reports that for people with rare or multiple diagnoses, the focus on a primary diagnosis can be a real problem, so this could be a welcome change. On the other hand, this change might slow down access to the scheme and force people to undergo lengthy functional assessments. 

And this is the big news:..Assessments are back on the table

The review will be recommending assessments and they won’t be “independent”. They will be performed by government staff or government contractors. The focus will be on support needs rather than functional impairment, which is important, especially for people with intellectual and psychosocial disability.

The review will also be calling on mainstream services to meet the needs of people with disabilities and have introduced a new jargon word, “foundational supports”, these are supports that everyone with a disability should be able to access, including people who are not on the NDIS. This is clearly an attempt to address the “only life boat in the ocean” and “oasis in the desert” scenario that Prof Bruce blames for the increased number of participants on the NDIS. But we have been calling for accessible and inclusive mainstream services for years and very little has changed. What will be different this time? We are worried that people with disabilities will again fall through the cracks if NDIS supports are taken away before mainstream services become inclusive and accessible.

If you are feeling concerned, then you are not alone

Having experienced the independent assessment trial myself, I’m worried about what this iteration of assessments will look like. We shouldn’t have to repeatedly prove that we are disabled. We don’t want intrusive and ineffective tests imposed on us by so-called “experts” who don’t know us. However, I take comfort knowing that Bruce was a strong advocate against independent assessments in 2021 and the government has repeatedly committed to codesign any changes to the NDIS. In fact Every Australian Counts is actively involved in the co-design work.

The government needs to stand by its promise
The government needs to uphold this commitment when considering these recommendations and remember its promise to rebuild trust with the disability community. The NDIS will only work when it is codesigned by people with disabilities, so our message to the government is clear – nothing about us without us!

and we are keen to know what will be recommended. 

I sat down with co-chairs Bruce and Lisa, who kindly agreed to a 2nd and final interview before handing in their report to the government. They were especially keen to speak with the Every Australian Counts community. A lot was revealed during the interview and it is clear that the NDIS review will be recommending major changes to the NDIS.

You can view the full interview here:

Here is a quick summary:

The review will be saying that the NDIS should not be as concerned about a person’s primary medical diagnosis. They want the focus to be on functional capacity instead. We have heard many reports that for people with rare or multiple diagnoses, this can be a real problem, so this could be a welcome change. On the other hand, this change might slow down access to the scheme and force people to undergo lengthy functional assessments.

And this is the big news: Assessments are back on the table

The review will be recommending assessments and they won’t be “independent”. They will be performed by government staff or contractors. The focus will be on support needs rather than functional impairment, which is important, especially for people with intellectual and psychosocial disability.

The review will also be calling on mainstream services to meet the needs of people with disabilities and have introduced a new jargon word, “foundational supports”, these are supports that everyone with a disability should be able to access, including people who are not on the NDIS. This is clearly an attempt to address the “only life boat in the ocean” and “oasis in the desert” scenario that Prof Bruce blames as the reason for the increased number of participants on the NDIS.
But we have been calling for accessible and inclusive mainstream services for years and very little has changed. What will be different this time?

If you are feeling concerned, then you are not alone

Having experienced the independent assessment trial myself, I’m worried about what this iteration of assessments will look like. We shouldn’t have to repeatedly prove that we are disabled. We don’t want intrusive and ineffective tests imposed on us by so-called “experts” who don’t know us. However, I take comfort knowing that Bruce was a strong advocate against independent assessments and the government has repeatedly committed to codesign.

The government needs to uphold this commitment when considering these recommendations and remember its promise to rebuild trust with the disability community. The NDIS will only work when it is codesigned by people with disabilities, so our message to the government is clear – nothing about us without us!