“Like most parents, my mum wanted to know that I was okay. But unlike most parents, her middle-aged son needs round-the-clock support from others, to stay alive.” Our good friend Dr George Taleporos has an important message for NDIS decision-makers, following the recent death of his Mother. “When we say the NDIS is for 450,000 Australians with disabilities – we are leaving out millions of family members who rely on the scheme to provide them with the assurance that their loved ones are going to be okay when they die.”
The NDIS is a new way of supporting people with disability. Whilst it aims to provide greater choice and control regarding services for participants it also recognises the important role of ‘informal supports’.