Your Stories

My name is John Rynn. I am 57 years of age.

I have lived with high needs cerebral palsy since I was born.

As I get older I need more and more support.

I am worried that without the NDIS I will be one day forced to move back to institutional care and out of my own unit in which I have lived independently for nineteen years.…

Iam a C6-7 quad resulting from a surfing accident in 2002.

Yes it has been a struggle and usually a drawn out process dealing with the powers that be, sharing out the restricted funding available to those such as myself that weren’t “lucky” enough to become disabled through a compensated accident.…

My name is John, I am a widower after my wife lost her battle with breast cancer over 6 years ago.

I am raising three teenage children, the two eldest have severe intellectual disability. My daughter has a chromosomal deletion & my son has Autism.…

I have days where I am in so much pain that I can’t function, where all I can do is sleep and have tears roll down my face. All the joints in my body ache and swell, my wrists being so swollen that my fingers will tingle.…

My daughter, Lina, was 13 years old and suddenly became paralysed from the waist down in a matter of 20 minutes. We spend a month in hospital and were discharged with no information about ongoing care or services. Lina is now 14 years old and we are nearly one year since onset of a rare immuno-neurological condition called Transverse Myelitis.…