Your Stories

My 23 year old son has Aspergers Syndrome. The up side of this condition is his ability to focus on his interest in computers. He has achieved 2 Advanced Diploma’s in the field of I.T. The down side is he still lacks the self confidence to go out by himself to any events where he could socialise.…

Nathan developed Infantile Spasms at age 3 months and despite early medical intervention had a complex seizure disorder until he was 10 years old. He was pretty much having constant abnormal brain activity which made it very hard for him to develop normally.…

I have identical twin boys. They are five years old, have a rare genetic condition, and can’t walk or talk. They are fully dependent on someone for every moment of their lives: eating, nappy changing, brushing their teeth, getting dressed…

My boys need so much special-needs equipment: bath chairs, feeding chairs (with head supports), (cut-out) play tables, standing frames, walkers..…

I was diagnosed with a chronic condition in my mide twenties, which was described by a neurologist as ‘clearly very disabling’. It took years of tests, medications and physical therapy to get me back to being independent. Without and financial and practical support of my partner I would not have been able to access the services I needed to stabilise my condition.…

Our daughter Livia was born full term with no obvious issues. For 10 weeks we were blissfully unaware of what was about to come.

We discovered that Livi was unable to see and there was no apparent reason why. The MRI didn’t explain why she couldn’t see but did show an “under developed brain”.…