There is more to do to make the NDIS a reality. Follow the steps so every MP gets a visit - even if they've had one already.
2. Now, arrange a meeting with your MP
Visit from October 3, when your MP is back from Canberra
Tell your MP your story and why the NDIS matters
Get your MP to say “I count”
1. Watch the video: An NDIS In My Lifetime
Video Transcript:
Motor Neurone Disease is a neurological disease. As yet there is no cure for it, and it’s inevitably fatal. I was diagnosed towards the end of 1996, given three to five years to live. I’ve got a bit of movement in one finger, I can move my knees a wee bit, can move my head obviously, clearly can move my mouth, but apart from that I’m totally paralysed.
In classic MND if you don’t die of a heart attack or pneumonia or whatever before that you end up in a completely paralysed body, except you can blink your eyes. The cruelty of it or a particular cruelty of it, apart from that, your mind remains absolutely clear, your brain absolutely clear, so you’re actually sort of living inside a paralysed body, which frightens the bejeezus out of me.
Let me put in a nutshell why the National Disability Insurance Scheme is fantastic. Up until now, people who’ve had accidents or suffered injury or paralysis or whatever due to the fault of others or organizations have quite rightly and absolutely properly been able to sue for compensation to get financial resources to help them with the rest of their life. That’s great. However, people who have acquired perhaps even a similar condition or effective condition of paralysis or whatever, caused from birth or a terrible disease like Motor Neurone Disease, or they’ve acquired later in life have had no opportunity to get access to resources.
The beauty, the magic of the national disability insurance scheme is that that distinction evaporates.
